Why Study Rare Disease? JAX s Nadia Rosenthal Talks Rare to Common | Miguel Skirzewski, M.Sc. Ph.D. P.M.
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Why Study Rare Disease? JAX s Nadia Rosenthal Talks Rare to Common | David Evans Shaw
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The creation of a natural history study is an important first step in the drug development process for any rare disease, and one that patient groups themselves can take the lead on. This video is part of NORD's education series, "Rare Disease Drug Development: What Patients and Advocates Need to Know." Start the series today and work at your own pace toward your Certificate of Completion: learn.rarediseases.org/courses/rare-disease-drug-development-series/ | National Organization for Rare Disord
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🚨 We’ve hit 2,000 participants—but we’re not stopping there. We need YOU to help us reach 3,000! 🚨 If you or a loved one is living with a rare or undiagnosed disease, your voice matters. Join today: https://livingrarestudy.org/ Every experience we collect through the Living Rare Study advances research, drives advocacy, and shapes a better future for the rare disease community. | National Organization for Rare Disorders, Inc. (NORD)
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